On Wednesday June 29th, Stollery Children's Hospital launched Upopolis, becoming the first healthcare organization in Alberta to join this social network that connects hospitalized and chronically ill youth across Canada to one another, family and friends.
“The Stollery has among the highest inpatient volumes in the country and serves a diverse patient population from across western Canada,” said Lois Wolgemuth, manager child life services, Stollery Children’s Hospital. “Upopolis can provide online social support for our patients and help them connect with others in a safe way, stay connected to their communities, and relate to other children and youth on a similar health care journey.”
Upopolis differs from typical social networks by delivering therapeutic benefits for the youth who use it. These benefits include being able to access medical content written in kid-friendly language so patients can better understand their diagnosis and treatment plan; and enabling connections with other patients who share similar diagnoses through public and private discussion groups, which can lead to new friendships, shared experiences and new interests that form a broader support network for the patient.
“Through the overwhelming support of TELUS as our technology partner, as well as our many individual and corporate supporters, today over 1,700 kids in children’s hospitals across Canada have been able to take advantage of Upopolis,” said Basile Papaevangelou, chairman and founder of Kids’ Health Links Foundation. “Having Stollery Children’s Hospital join our Upopolis family puts us a major step closer to our goal of bringing Upopolis to all Canadian children’s hospitals, of which there are now only 3 remaining. Our bigger vision is making Upopolis available in every medical treatment facility that serves children and teens across the country, and we are forging ahead towards making that a reality.”
For more info about this exciting event, check out the full press release here.
Earlier this week, on Wednesday, December 3rd at The International Centre, KHLF attended the Canadian Association of Exposition Management (CAEM) 2014 Holiday Luncheon Event. We are honoured to have been selected as CAEM'S Charity of Choice once again this year! It was a pleasure to lunch amongst friends as we continue to develop our relationship with such a generous organization and supporter of our work.
We were also so grateful to be presented with a cheque of $8,437 from the fundraising produced by CAEM and its members at last year’s holiday luncheon, their 2014 Conference and their Sports Day.
It is because of our amazing partners, like CAEM that we are able to continue to expand our initiatives and realize the full potential of our Foundation.
UPOPOLIS Rocked "The Rock"!
Our Newfoundland & Labrador launch of our UPOPOLIS Program was a great success! Though the temperature was chilly, we certainly basked in the warm welcome received from Eastern Health and Central Health, our newest UPOPOLIS sites.
We were so excited to have The Honourable Steve Kent, Deputy Premiere and Minister of Health and Community Services attend the event, and it was a tremendous honour for Kids' Health Links Foundation and UPOPOLIS to be spoken about by him later that day at the House Of Assembly - a short video clip can be viewed HERE!
A HUGE thank you to TELUS Health and Eastern Health Newfoundland & Labrador in particular for helping us rock "The Rock" by organizing and promoting this province-wide event!
St. John’s – Newfoundland and Labrador will welcome TELUS Health and Kids’ Health Links Foundation (KHLF) to the province on Thursday, November 20, 2014 to make a province-wide announcement affecting pediatric patients and their access to youth-friendly medical content and social connections with families, friends and schools while undergoing treatment.
The Honourable Steve Kent, Deputy Premier and Minister of Health and Community Services, along with representatives from Eastern Health, Central Health, TELUS Health and the Kids’ Health Links Foundation will be present for the provincial launch of this initiative.
Note to editors: Cameras and reporters welcome to attend
When: Thursday, November 20, 2014 9 a.m.
Where: Paradise Youth Treatment Centre 7 Mallow Drive (off Paradise Road)
What: Interview and Photo Opportunities: • Honourable Steve Kent, Deputy Premier and Minister of Health and Community Services, Government of Newfoundland and Labrador • David Diamond, President and CEO, Eastern Health • David Thomas, Vice President, TELUS Health • Basile Papaevangelou, Chairman and Founder, Kids’ Health Links Foundation
Follow the conversation on Twitter using #Upopolis.
For more information, please contact:
Jill Yetman TELUS Media Relations 416-992-2639 email@example.com
April Ganong Kids’ Health Links Foundation 905-817-1717 firstname.lastname@example.org ###
This Thursday and Friday, November 13-14, 2014, Kids' Health Links Foundation is hosting its 3rd Annual UPOPOLIS Super User Meeting in Toronto. This yearly event brings together key child life specialists from across the country from that are using and enjoying the positive benefits of the UPOPOLIS program. Child life specialists are the life-blood of UPOPOLIS. They act as the administrators and champions of the program in the institutions where it's found. We've found that bringing them together annually for UPOP training, in-depth discussions on socialization of the program within their hospitals, best-practice sharing and hot topic brainstorming – all in an effort to promote collaboration and develop ways to continually improve and enhance the program – has become a much anticipated, effective and exciting event we all look forward too.
All 10 UPOP institutions with the program will have at least 1 delegate to represent their child life teams. Participants include:
McMaster Children’s Hospital – Hamilton, Ontario BC Children’s Hospital – Vancouver, British Columbia Children’s Hospital of Eastern Ontario – Ottawa, Ontario IWK Health Centre – Halifax, Nova Scotia The Hospital for Sick Children – Toronto, Ontario CHU Sainte-Justine – Montreal, Quebec Holland Bloorview Kids Rehabilitation Hospital – Toronto, Ontario Children’s Hospital, London Health Sciences – London, Ontario Emily’s House - Toronto, Ontario Lutherwood - Waterloo, Ontario
This year, we are excited to have delegates from 3 tertiary care centres join us as well. They are exploring the possibility of bringing UPOPOLIS to their units (eg. Oncology) to support the children and youth they see. We look forward to their ideas, contributions, and feedback.
We are also very excited to announce Mary Jo Haddad, KHLF Board Member and Past President & CEO of SickKids Hospital as our Keynote speaker to kick-off our meeting on Friday morning!
THURS, NOVEMBER 13
2:30 - 4:30 PM UPOPOLIS 2.0 Orientation for New Super Users
5:30 - 6:30 PM Welcome Cocktail Reception
6:30 - 9:00 PM Group Dinner
FRI, NOVEMBER 14
8:00 - 8:30 AM Breakfast Buffet Marquis Restaurant
8:30 - 8:45 AM Special Welcome & Introductions Basile Papaevangelou, Founder/President, KHLF Mary Jo Haddad, KHLF & TELUS Board Member, Past President & CEO, SickKids Hospital
8:45 - 9:30 AM Super User Needs Assessment Survey Results & Discussion Allison Sohanlal, KHLF UPOPOLIS Program Manager
9:30 - 10:15 AM UPOPOLIS 2.0 Training: CK Editor, Embedding Video, other TBD Presenter: Mario Cantin, TELUS
10:15 – 10:45 AM Hot Topic Charting & Break
10:45 – 11:45 AM The Road AheadTaking UPOP 2.0 Mobile Presenters: TELUS Team
11:45 – 12:30 PM Lunch
12:30 – 1:30 PM UPOPOLIS as Part of the Theraputic Toolbox: A Discussion of Psycho-Social Support for Youth in Hospital Presenter: Allison Sohanlal, KHLF
1:30 – 3:00 PM Hot Topics for Future Direction of UPOPOLIS: Group brainstorming Facilitators: Allison, KHLF & April Ganong, KHLF
3:00 – 3:30 PM Closing Comments & Thank You
UPOPOLIS Announces Canada-Wide Launch Event
Making cyber-safe connections even easier for paediatric patients across Canada
FOR IMMEDIATE RELEASE
Toronto, Ontario – The Kids’ Health Links Foundation (KHLF) is pleased to announce its Canada-wide launch event to be held June 18th, celebrating the release of the newly redesigned and revamped Upopolis 2.0, a private online social network available exclusively to paediatric patients in hospitals and healthcare facilities throughout Canada.
Developed in partnership with TELUS Health, the new UPOPOLIS 2.0 makes it even easier for hospitalized youth to connect with one another, with family and with friends.
“The idea for UPOPOLIS was inspired by my daughter’s near-death experience in 2002, followed in 2004 by the death of a close friend of hers after an extended battle with cancer,” says Kids’ Health Links Foundation co- Founder and President Basile Papaevangelou. “Both required lengthy hospitalizations, creating a sense of isolation and loneliness at times, which is often the experience of hospitalized kids and teens. At its core, UPOPOLIS was created to help paediatric patients connect with family and friends and to also enable them to form new ones with patients at other hospitals and healthcare facilities. We’re honored to be able to work with Telus and our hospitals and healthcare facilities to offer UPOPOLIS 2.0 to these young people.”
Along with its psycho-social benefits, UPOPOLIS users can share photos, chat, play games and much more. A particularly important feature of UPOPOLIS is its kid-friendly medical content. Written specifically for kids & teens and reviewed and verified by medical professionals, this library of information allows paediatric patients to learn more about their medical conditions and treatments.
“At TELUS, we take pride in connecting millions of Canadians with the people and information that matters most to them. For us, helping connect hospitalized kids with a safe and secure social network is an extension of that,” said Paul Lepage, President of TELUS Health. “Our commitment is to provide the best healthcare information technology solutions in Canada and leverage our unparalleled telecommunications network to give healthcare providers life-saving reach nation-wide from coast to coast to coast. We consider it a privilege to support ground-breaking initiatives like UPOPOLIS because we care about turning information into better health outcomes for all Canadians.”
Hospitals that are part of the UPOPOLIS network and that will be participating with in-hospital events on June 18th include: The Hospital for Sick Children (SickKids), Toronto, ON; McMaster Children’s Hospital, Hamilton, ON; IWK Health Centre, Halifax, NS; Children’s Hospital of Eastern Ontario (CHEO), Ottawa, ON; Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON; CHU Sainte-Justine University Hospital Centre, Montréal, QC; and Children's Hospital London Health Sciences Centre, London, ON.
At the Kids’ Health Links Foundation (KHLF), our mission is to use technology to alleviate the stress, isolation and loneliness of children in medical care, and keep them connected with their family, friends and school community.
We believe that positive emotional well-being can be fostered by maintaining family connections and encouraging active social participation. By providing technology that enables this well-being, we hope to help children heal faster and better overcome traumatic medical experiences. For more information about the Kids’ Health Links Foundation and UPOPOLIS, visit www.kidshealthlinks.org.
You're invited to join us at Glen Abbey Golf Course on September 15th, 2014 for our 4th Annual Kids' Health Links Golf Invitational and Fundraiser. With your generous support and participation, it's sure to be great day as we raise funds for our flagship initiative, UPOPOLIS.
On September 16th, 2013 nearly 150 golfers participated in the KHLF 3rd Annual Golf Invitational and Fundraiser at the beautiful Glen Abbey Golf Club in Oakville. It was a fantastic day and we thank all our corporate and individual sponsors and supporters for making it a great success!
On Monday September 26, 2011 we held our inaugural Charity Golf Invitational and Fundraiser at the exclusive Glen Abbey Golf Club in Oakville, Ontario!
The proceeds from this tournament are making it possible for UPOPOLIS to continue helping to alleviate the stress, isolation and loneliness children experience during stretches of medical care. This safe, online community provides answers and comfort with an online library of easy to understand medical information written especially for kids and teens.UPOPOLIS is the only private and secure social network in Canada that helps hospitalized children stay connected with family and friends, remain up to date with school, and virtually meet kids in hospital across the country. To date, UPOPOLIS has touched the lives of over 1,500 hospitalized children at McMaster Children’s (Hamilton), SickKids (Toronto), CHEO (Ottawa), IWK Health Centre (Halifax), CHU Sainte-Justine (Montreal) and BC Children’s (Vancouver). Many hospitalized children still remain outside the UPOPOLIS community. A hearty thank you to all our golfers, sponsors, volunteers and donors!
The First Annual Golf Invitational & Fundraiser for Kids' Health Links Foundation
UPOPOLIS is the only private and secure social network in Canada that helps hospitalized children stay connected with family and friends, remain up to date with school, and virtually meet kids in hospital across the country.
Register today to join us in championing this cause. In support of UPOPOLIS, Kids’ Health Links Foundation (KHLF) is hosting its First Annual Charity Golf Invitational and Fundraiser on Monday, September 26th at the exclusive Glen Abbey Golf Club in Oakville, Ontario.
The proceeds from this tournament will make it possible for UPOPOLIS to continue helping to alleviate the stress, isolation and loneliness children experience during stretches of medical care. This safe, online community provides answers and comfort with an online library of easy to understand medical information written especially for kids and teens.
To date, UPOPOLIS has touched the lives of over 1500 hospitalized children at McMaster Children’s (Hamilton), SickKids (Toronto), CHEO (Ottawa), IWK Health Centre (Halifax), CHU Sainte-Justine (Montreal) and BC Children’s (Vancouver). Many hospitalized children still remain outside the UPOPOLIS community. You can help change this by registering now!
September 26, 2011 Glen Abbey Golf Club 1333 Dorval Dr. Oakville, ON L6M 4G2 Canada
Cost: $3000 per Foursome * Payments only accepted via cheque. Please make payable to:
Kids’ Health Links Foundation 2000 Argentia Road Plaza V Suite B-100 Mississauga Ontario L5N 2R7
8:30am - Arrive & Register (optional Warm-Up on the Practice Range)
10:00am - Golf – Shotgun Start
3:00pm - Cocktails
4:00pm - Dinner, Prize Presentation & Live Auction